Margaretsnews
Thursday, September 28, 2006
 
It’s Thursday!

I’m feeling MUCH better today than I was earlier this week. I’ve been working ½ days, then coming home, getting a bite of lunch and resting on the couch for a while. “A while” is a relative term, in this case it means “the rest of the day.” The house, the laundry, and the cooking all get a vacation during “chemo week”. (I must say, the boys do help around the house when asked and they do laundry and cook on request.) On the 7th day after chemo, I feel much better, I have more energy, no more achy bones and no foggy head. And then it’s time to play catch-up with the house. And as soon as I feel better, those very same boys have no hesitation at all in handing it all back to me. None. It’s almost like they have lives that don’t include cooking & such.

Speaking of cooking, I’ve had no cravings this time. There are things I absolutely don’t want to eat, like fresh fruit and apple juice (not together). Mashed potatoes are very appealing (ha!), but I wouldn’t say they’re irresistible. I’m a little disappointed; cravings were the ONE fun thing I could look forward to in this whirlwind.

The one thing that never disappoints me is the support I have from all of you out there in cyberland. I can feel your presence, whether you comment on the blog or not, or whether I know you or not. (People who couldn’t pick me out of a crowd read my blog—how cool is that?!) Please know that I am grateful for your many, many kindnesses. In this season of change, it’s reassuring to know that you all are constant. Thank you.
 
Monday, September 25, 2006
 
Monday morning

Well, the best thing I can say about today is that it’s no longer Sunday. Sunday was a rough day for me; the chemo and the shot kicked in with both feet, effectively rendering me worthless, just like Superman’s Kryptonite. Looks like today will be a repeat of yesterday. And then this round will be over, and life will get back to normal. Well, normal for me, anyway.

The good news is that this time, I didn’t gasp, wheeze, and cough up a lung the days after chemo, which had become the usual business. I think that means that the chemo is working. Also, my doctor told me that I could take LOTS more Motrin for the pain. So I did. Oh, I still hurt, but the pain is more tolerable. I’m eating, although not much. Yup, spending lots of time on the couch, watching daytime TV—someone please save me—and my music TV station, and napping throughout the day. Now if only I had someone around to fan me and bring me bon-bons…

Ok, now the couch beckons and I am unable to resist. Thanks for being here.
 
Friday, September 22, 2006
 
Friday, after 5

Yeeha!! Treatment #3 is over! I was reluctant to go today; I knew what was coming and I didn't want to deal with it. Tough nuggets, gotta go anyway. And I'm glad I did, because today, I was the young, hot chick over in the corner. (With a scarf-ed head, which just added to the mystique. Yeah. Right.) When I arrived at the Chemo Lounge for my "happy juice", it was crowded! Lots of people getting juiced up for the weekend, it seemed, so I found a nice quiet spot on the other side. One by one, they all left, and at one point, I was the only one getting happy. Hmmm... I wonder if someone's snoring ran them off...? Oh, not mine, of course; I was certainly NOT snoring nor drooling on my pillow right there in front of the nurses' station in all my young, hot chick glory.


Many thanks to my cheering squad! I'm still getting meals on a regular basis, phone calls, emails, cards and well-wishes sent to me by caring and devoted people. I truly do have a soft place to land. Thank you. Yes, you in the corner, you too.
 
Wednesday, September 20, 2006
 
Wednesday

Today is Wednesday and I’m noticing that I’m mentally gearing up for this next round of “happy juice”, which occurs on Friday. It takes no concentration on my part to administer the juice, but it does take some determination to go ahead and face what’s coming, knowing full well how I’m going to feel afterward. I’ve had no trouble at all with nausea (thank God for anti-nausea drugs!), but the fatigue and the achy bones really get me. It’s exactly like having the flu; just without the headache and fever. (Where is that stunt double that I was promised? Any volunteers?)

This week, I’m eating just like I did in the pre-cancer days, (like a locust—everything in sight!) so next week, when nothing is appealing, it’ll all balance out. Yes, it does, too. Oh, relax, I’ll eat next week; I tend to feel much better when I do. Even a little bit of food makes the difference between lying comatose on the couch, and sitting up, conversing with someone. It’s just hard to eat when there’s just no hunger or desire for food at all, which is a new experience for me. Those who know me know that I LOVE food—the colors, the smells, the textures, the taste, the way food looks on pretty plates—and to have all that just gone is depressing. Fortunately, it’s only temporary; eventually the taste buds wake up and it’s party time again.

Speaking of food, I’ve forgotten to tell y’all the latest! It seems that chemo gives me cravings, once I can eat again. The first time it was apple juice and fresh fruit (not together). The second time it was chocolate milk and baked potatoes (not together). I can’t wait to see what it’ll be next week! I hope it’s something fun, and not something like beets and liver (not together).

In other news, I had 2 wonderful surprises in the last week or so! In the mail, I received a rather large money order, with the return address of my workplace. I was astounded to receive it, and want those responsible to know how much I value their generosity. The second surprise came from other kind people contributing to help me with medical bills, which came at just the right time. Since I don’t know the names of those involved in either surprise, I’ll just say thank you all for your thoughtfulness and generosity. Please know that your gifts are very much appreciated, and they mean more than I can say.
 
Sunday, September 17, 2006
 
Sunday

There are lots of people who read this blog and get information. Others read and comment. And then there are others, who read and then want the "real" story. And this blog is for them.

Honestly, I'm OK. Yeah, there are days when I'm tired and cranky, my throat hurts, my chest hurts, my head hurts, and I can't take one breath without gasping and coughing. I get a little depressed sometimes. I get VERY frustrated at my inability to function like I used to, and I just hate, hate, HATE having no hair. I want to stomp my foot and throw dishes. (I don't, but I want to.)

But there are more days when that doesn't happen. Most days I don't hurt much, the coughing is minimal, and I am grateful that I'm no sicker than I am. I don't wonder "why me?"; there's no reason to, and no good answer anyway. I have a wonderful support system, with people ready and willing to jump in whenever for whatever. My kids are OK; they get the facts as I get them, and they are free to ask any questions that arise. They both seem very happy to do whatever I ask of them, and they don't complain if their plans have to change because I need them with me. My former spouse is very supportive as well; he often offers to help in any way he can. My workplace is also very supportive; co-workers offer encouragement, wonderful meals, and pats on the back. People in my building, whom I don't yet know, offer good wishes when they see me.

When people call me, they are generally surprised that I sound like myself. (I don't know who they expect!) Yes, I have cancer, but I still laugh and joke around like I always have. We talk about the things we've always talked about; sometimes we talk about cancer, sometimes we don't. I don't mind answering questions about this illness, but I don't want to bore people with it, either.

The blog is to inform people of my progress (or lack thereof), but it's also a record for me, so when this is all over, I will remember what it was like. I don't put in every detail, some things are just too personal or inappropriate for public view, but nearly all of it is right here, in black & white. And on those days when someone posts for me, I'm usually dictating from the couch, so all the information comes from me. And from what I've experienced so far, in the midst of this upheaval and uncertainty, there is much goodness and light.

So, yes, I'm OK. This, too, shall pass. And that's the real story.
 
Thursday, September 14, 2006
 
Thursday

Good news!! I went to see the oncologist, and we discussed the results of the latest CT scan. It appears that the tumor is shrinking just a little--YEEHA!! My bloodwork also looked good, so that means that this regimen is working and we'll stick with it.

It's a mixed blessing, sort of, because I know now that I have 2 more chemo treatments, then I get chemo along with radiation, then surgery, and then more chemo. Yup, it's gonna be a year before I have hair again. Sigh... (I was sort of hoping to hear the doctor say that I was all healed and it's been nice working together.) So much for that trip to Hawaii. Or even to the beach. On the other hand, this plan will probably make me well again, so I s'pose I can forego the sand and the waves for the time being. All in all, good news, which I could certainly use. It's been a tough day.

It's been brought to my attention that some people want to respond on the blog but don't know how. So here's how: At the end of each entry, there is a time, the word "comment" and an envelope. Just click on the word "comment", and a window will appear. Type in what you want (be aware that others will see what you post), click either the "blogger name" or "anonymous" button (some people click the anonymous button and then put their names or initials so I'll know who they are), and click "login and publish". That's it. I do like hearing from people, but I know that some people just like to lurk. It's OK; I'm a former lurker myself.

Thanks for letting me share my good news with you! I depend on y'all to hold me up during the rough days, so it's only fair that y'all get some good news once in a while, too. Y'all do good work. Thanks for being here.
 
Monday, September 11, 2006
 
Another Monday

I know it's been days since I've posted anything; once again, no news is good news. I feel fine, I'm eating and sleeping well, I'm working, and trying to catch up on all those things at home that I've neglected during the past week or so. Yes, my exciting life includes the rush of cleaning the shower! The suspense of balancing the checkbook! The conquering of the mountain of dirty laundry! Yes, it's just one thrilling moment after another. Be still my heart.

I had a CT scan today; it's time to look at the tumor in my lung and see if the chemo is affecting it. I guess I'll get the results sometime soon. I'll keep y'all posted. My general feeling is that the tumor is not growing; my throat doesn't hurt much these days. Of course, it could be that I'm so tired from the chemo that I don't notice!

I had a wonderful compliment the other day. A woman who works in my building let me share her elevator ride. In the few seconds it took to get from floor to floor, we exchanged pleasantries, and then she said something like, "I know it's not, but you make it look easy,". Talk about an ego boost! There are days when I feel like %$#@, and look it, and getting through some days is a genuine struggle. It's good to know that no one sees that part. Thank you, C.! You made my day!

And C. is just one of many who make my day on a regular basis. I am so grateful to have all of you right here, holding my hand and smoothing over the rough places. Thank you. And especially you, over there.
 
Friday, September 08, 2006
 
Friday Night

This is a short entry tonight, folks. I'm a bit tired, and honestly, there's no news. I worked 4 days this week (half days), and was just happy as a clam to snooze on the couch for an hour or so each afternoon. I've been eating a little, and resting a little, and trying to get back to whatever "normal" is. We'll see how that goes.

Thanks for being here for me. I have plenty to eat, LOTS of cards from people who are thinking of me, LOTS of emails, and LOTS of kind people who call me just to check in. I could not fight this dragon without you all here with me; your support is what keeps me strong and moving forward.
 
Tuesday, September 05, 2006
 
Tuesday's News

Oh, what a difference a day makes!

I am feeling MUCH better today than yesterday. I'm still a bit tired, but not nearly as achy. I went to work for a half a day, and was quite happy to come home and snooze on the couch for the rest of the afternoon. I get worn out just from walking out to the mailbox and have to rest. Yes, I'm eating. Not much, to be honest, but I am eating.

I have made some observations that I'd like to share.
1. Being bald feels good. There's a cool breeze on the top of my head all the time, and I like it. It's similar to that feeling coolness on the feet when you take your socks off.

2. During "happy juice" week, food tastes sort of flat, like it has only about 1/2 the flavor. I've also noticed that sweet things are WAYYYYY too sweet. And my favorite, dark chocolate, has no appeal at all. Pity.

3. Time seems to fly during "happy juice" week. I don't know if it's because I spend a lot of time sleeping, or if time has become irrelevant.

4. I have the best family and friends on the planet. There are lots of people taking very good care of me, and I appreciate every one of you. Yes, you, too.
 
Monday, September 04, 2006
 
Ok, so between the chemo and the shot yesterday, Mom feels like lying on the couch all day not doing anything at all. This was expected but is still hard. She doesn't feel like eating much but She is getting some food down so don't worry about that. Thank you all for your continued support and thoughts, it is days like today that they are needed the most.
 
Saturday, September 02, 2006
 
The shot


Part of my cancer treatment involves getting an injection the day after the chemo. Since my chemo day is on Friday, the injection must be given on Saturday. OK, this is not a problem; I've been giving shots to my son for years. I can do this.

Oh, I was all gung-ho at the doctor's office, all brave and macho: "Of course I can do this, it's just a little shot, right? Geez. How hard can it be?"

When will I learn??

On Saturday morning I was ready to inject myself. Sort of. At the last minute, I wondered why I ever thought it was a good idea for me to do this. If someone else did it, I wouldn't have to look. If someone else did it, then I wouldn't have to. If someone else did it, then I could be real brave. Too late for all that. Bite the bullet, girl, get it done.

I picked a good spot on my thigh, cleaned with an alcohol wipe and put the needle in. My hand started shaking, and the needle came out. "&@&^$#", I said. So I prepped another spot, and tried again. Didn't get the needle all the way in and again, it came right out. "Double $#@*^!", I said louder. (I guess I was hoping that the syringe would hear me and straighten up.) "Ok, girl, what's so hard about this? Just stick it all the way in, push the plunger and be done. Quit being such a wimp." And so I prepped another spot on the side of my thigh, stuck the needle all the way in, and finally got all the medicine in. It didn't hurt nearly as much as the first two, so at least I know the "sweet spot". Only two more of those to go. I hope I do better for them.

I now have renewed respect for my son, who takes several shots a day and never, ever complains. He's my hero.
 
Friday, September 01, 2006
 
The 2nd round

It's Friday afternoon, and I'm home, safe and sound. Well, safe anyway. The drugs I get make me feel drunk, slow, and silly; for a little while it's kind of fun, so I enjoy that while I can. Today went MUCH better and faster than the first round, and now that the chemo administer-ers know how much and how slow, we can get this show on the road. My job, apparently, is to lie there and doze, which I can do.

The funny thing today was this: My dad had volunteered to drive me to my treatment this morning. He arrived about 5 minutes early, and of course I was not quite ready. I answered the door in my robe, no makeup, and this ol' bald, scruffy, stubbly head, and TA-DA!! There's my "bro" with him. (more about him later.) Dad said, "Good morning! I brought Mark here to surprise you!" Well. He certainly did. Why they didn't hightail it out of there is beyond me.

This weekend will be the days when I'll be tired and achy, but I'll keep the blog updated as well as I can. I may have someone post for me. In addition to keeping my cheering squad informed, this is a good record-keeper for me, as I want to have this info for later.

Oh, and yes, I do read the comments! Over and over. The funny ones make me laugh and they ALL make me feel cared for and thought of. I get lots of warm fuzzies when I read your kind words. (By the time this is all over, y'all will all know each other as well as you know me! Maybe I should introduce everyone??)

Thanks for being here to catch me. I am so very thankful and grateful to have such loyal and giving people in my life. To E and my ISD angels: Thanks for the dinners. Can't wait to eat them!
 

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I decided to put a blog together for 2 reasons. I have cancer and am undergoing treatments. I wanted a record of events, and I also knew I wouldn't be able to update everyone constantly. You know how it goes: the first person who calls gets very good information. The 10th person gets, "I'm fine, kinda tired. Can we talk later?", which I thought wasn't fair. The response has been awesome; I never expected this kind of success. Thanks, Blogger! And thanks to all who read, respond, and care.

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